The CADASIL Research and Support Trust

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The CADASIL Research and Support Trust Profile

THE CADASIL RESEARCH AND SUPPORT TRUST

Cerebral Autosomal Dominant Arteriopathy with Sub-cortical Infarcts and Leukoencephalophathy

CADASIL is a hereditary disease of the brain and presents with migraines with or without an aura, mood disturbances, depression, focal neurologic deficits, strokes, and dementia. Most patients will show symptoms by age 60 years.

The CADASIL Research and Support Trust was created by Mr Jack Shields, a CADASIL Sufferer, who was diagnosed in 2001.

The Trust was set up as a direct result of the lack of information and help available for those diagnosed with CADASIL.

CADASIL can be described as a 'newly discovered illness'. At present it is impossible to say how many people worldwide have CADASIL. It is agreed by members of the medical establishment that CADASIL is HUGELY underdiagnosed.

The aims of the CADASIL Trust are..

To increase awareness of CADASIL

To provide information and support to CADASIL sufferers, their families, and doctors

To co-ordinate research into positive treatments for CADASIL

To co-ordinate research into a cure for CADASIL

To develop a treatment centre for CADASIL sufferers

We invite fellow CADASIL sufferers to register their details with us by clicking on this link.

http://www.cadasiltrust.org/cadregform/use/cadregform/form1.html


The website is an excellent source of up to date news and information concerning CADASIL.

Jack, through the Charity, is now working on building relationships with experts to encourage and support research into finding a cure for CADASIL




The CADASIL
Research and Support Trust is listed in DIVIDE

The CADASIL Research and Support Trust Locality of Operation

• National
• Overseas

The CADASIL Research and Support Trust Areas of Benefit

• Disabled
• Health
• Medical Research
• Mental Health

Address




Tel - 07811370975
Fax -

Websites and Email Contact
The website of The CADASIL Research and Support Trust is - http://www.cadasiltrust.org/

Number of Trustees
The total number at The CADASIL Research and Support Trust is 2

Donate Webpage Available
There are Donate Webpage Available at The CADASIL Research and Support Trust

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