Nystagmus Network Profile
Nystagmus Network (NN) provides support and information to anyone affected by the eye condition nystagmus. We help families -- especially parents of newly diagnosed children -- by explaining the effects of nystagmus and how to minimise them. We have a telephone helpline (029 2045 4242 or 0845 634 2630), a quarterly newsletter, information sheets and books about nystagmus, including two written for children.
We work with other charities, hospitals, schools and social services and provide training in what it is like to have nystagmus. We support research into nystagmus and have organised two international research workshops looking at the causes and genetics of nystagmus, its impact on daily life, diagnosis and possible treatments. NN is a registered charity (803440).
Nystagmus Network Locality of Operation
Nystagmus Network Areas of Benefit
Tel - (029 2045 4242 or 08
Websites and Email Contact
The website of Nystagmus Network is - http://www.nystagmusnet.org
Number of Trustees
The total number at Nystagmus Network is 5+
Donate Webpage Available
There are not Donate Webpage Available at Nystagmus Network
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