FOP Action

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FOP Action Profile

FOP in an abbreviation for Fibrodysplasia Ossificans Progressiva previously known as Myosis Ossificans Progressiva.

FOP is a rare and distressing medical condition where bone forms in muscles and other soft tissues of the body. Whenever extra bone is formed across the joints it restricts movement. It is a progressive disease and there is no cure. It does not effect a persons intelligence.

FOP affects 1 in 2 million people worldwide. It has no ethnic or religious pattern.

There has been 700 confirmed cases across the globe from an estimated 2500.

In the UK there is 45 known cases and 285 known cases in the United States.

FOP Action Locality of Operation

  • National

FOP Action Areas of Benefit

  • Children and Youth
  • Disabled
  • Family Welfare
  • Health


Tel -
Fax -

Websites and Email Contact
The website of FOP Action is -

Number of Trustees
The total number at FOP Action is 5+

Donate Webpage Available
There are Donate Webpage Available at FOP Action

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